“I have broken bones while sleeping.”
P* is 34. She lives in Borivali, a suburb of Mumbai, the city where she was born and raised. She works at an office in one of the city’s commercial hubs and spends hours on the infamous local trains every day.
Policy limbo
Govt’s ‘honest mistaken belief’: 100 million rare disease patients put on hold
After dropping the "unimplementable" 2017 national rare diseases policy in December last year, and in the face of multiple court cases, India's health ministry has promised a new policy in nine months. But will it be enough for millions with spinal muscular atrophy, brittle bone disease and more?
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